Food, glorious food

Taking a cue from Adam Brown’s recent post, write a post documenting what you eat in a day!  Feel free to add links to recommended recipes/shops/whatever.  Make it an ideal day or a come-as-you-are day – no judgments either way.  (Thank you, Katy of  Bigfoot Child Have Diabetes for this topic.)

Ive recently changed what i eat in a big way so here is a typical food day

Breakfast
Porridge with either blueberries/raspberries/banana topped with agave syrup & fruit juice.

Lunch
Either chocolate snackajacks topped with strawberries & raspberries.
Or ryvita topped with cottage cheese.
Yoghurt
Popcorn or a kitkat

Occasionally though i have sushi (which i love again after horrif food poisoning from eating M&S’s sushi)

(Saturday & Sunday’s are days i can have bread)

Dinner
Bit of a anything goes but its things like
Chilli
Spag bol
Curry either indian or thai
Chickpea dahl
Jacket potato
Occasionally a shop bought pizza or take away (i try to only have this once or twice a month)

My weaknesses are
icecream
Chocolate
Pringles
Cakes
After all ive got a bolus for that 😉

We’re going through changes…

Today let’s talk about changes, in one of two ways.  Either tell us what you’d most like to see change about diabetes, in any way.  This can be management tools, devices, medications, people’s perceptions, your own feelings – anything at all that you feel could use changing.  OR reflect back on some changes you or your loved one has seen or been through since being diagnosed with diabetes.  Were they expected or did they surprise you?

Hmmmm i think one of the main thing id like to see is a cure, even before i took part in JDRF UK’s CountMeIn campaign at Parliament.

I (at the possible amusement/annoyance of my healthcare team), want to try every possible “cure” & new management method going.

One thing i really want is the artifical pancreas, reading about it makes me giddy at the posibilities for the future in our healthcare then nostalgic for the days when i wasnt Laura with diabetes (i know, i have diabetes but it doesnt have me).

Over the 12 years of being diagnosed, ive seen some amazing break throughs in diabetes like the forms of therapy to meters that dont require you to attend hospital for a blood transfusion.

Let it go…

Yesterday we kept stuff in, so today let’s clear stuff out.  What is in your diabetic closet that needs to be cleaned out?  This can be an actual physical belonging, or it can be something you’re mentally or emotionally hanging on to.  Why are you keeping it and why do you need to get rid of it?  (Thank you Rick of RA Diabetes for this topic suggestion.)

So blog week has decided on a topic to match that bloody frozen song, let it go (no i wont be bursting into song).

I dont think i have much to let go regarding my diabetes, my hate of the disease comes & goes.

I do however horde diabetic supplies, i still have my first blood sugar meter, first MDI pens & at my mums house, the glucogen injection kit they sent me home with 12 years ago….

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Diabetic filter or lack of….

Many of us share lots of aspects of our diabetes lives online for the world to see.  What are some of the aspects of diabetes that you choose to keep private from the internet?  Or from your family and friends?  Why is it important to keep it to yourself?  (This is not an attempt to get you out of your comfort zone.  There is no need to elaborate or tell personal stories related to these aspects.  Simply let us know what kinds of stories we will never hear you tell, and why you won’t tell them.) (Thank you Scott E of Rolling in the D for this topic.)

So todays topic is keeping it to yourself.

My diabetes = my rules.

If i want to rant about a crappy day of sugars or celebrate exercising without a serious crash of blood sugars then i will (but i may not do it so colourfully to my consultant or DSN).

In plain terms, this shit is hard to live with 24/7 so there are times when i may say something like i shouldnt.

Take the time at work asking for a plaster as id sprung a leak aka i’d removed my previous cannula to be greeted with a mixtute of blood & insulin coming out of the site (that apparently was overshare, to me it was normal).
Or like the time i announced at home time that i was off to find a pot to piss in for clinic (the look on everyones face at work was funny as hell to me as i have no dignity left in this game anymore, especially when someone asks for your urine so they can test it there & then before sending it off to be tested some more).
Or like the time i had to lift up my dress, pull down my tights to show my attractive male DSN my cannula sites (my fat tummy jiggled as he poked & prodded, i wanted the ground to swallow me up).

I do speak my mind #nofilter so very little is off limits to me.

I love that i have fellow diabetics in my life who know where youre coming from when you say something that doesnt make sense to normal people.

no such thing as cant

In the UK, there was a diabetes blog theme of “I can…”  that participants found wonderfully empowering.  So lets kick things off this year by looking at the positive side of our lives with diabetes.  What have you or your loved one accomplished, despite having diabetes, that you weren’t sure you could?  Or what have you done that you’ve been particularly proud of?  Or what good thing has diabetes brought into your life?  (Thank you to the anonymous person who submitted this topic suggestion.)

Yay its blog week again & todays topic is I can….

Well i can do almost anything with my diabetes in tow.

Yes i may not have the best out look on life as im a glass half full kinda gal depending on my depression.

I can kick ass/argue til im blue in the face all in the name of diabetic prejudice (or a bad mood).

But more importantly i can educate those out there who are misinformed/uninformed about the disease that came to stay with me 12 years ago.

I do hope for qualities for diabetics but that maybe a long time coming.

16 hours on

well i survived the night without my pump.
i must say i was really worried about what was going to happen in my sleep incase i had a lot of fast acting on board.

from 8pm sunday night, its gone like this

8.50pm – 7.1mmol
10.17pm (went to bed with my split of lantus) – 8.4mmol
1.04am – 4.0mmol (I had 3 jelly sweets)
4.47am – 7.8mmol
7.27am (when I got up with my split of lantus) – 10.6 mmol
10.05am – 15.9mmol
12.19pm (lunch time) – 14.0mmol

i have felt off it to be perfectly honest, i dont know if its because i have no “working” background in my system yet or what.

but can i ask, please can i have a working pancreas now????

Breaking (diabetes) bad

I came to the decision a few weeks ago to have a pump break but had decided that i would use up my open pump supplies first.

After yet again a leaking cannula less than 24 hours old, it took me all my time not to cry, rip my cannula out & throw my pump against the wall.

As of 8pm tonight i have decided that i am now taking my pump break.

And im absolutely terrified of going back on my pens but after nearly 12 years of this fucking disease i crave, no better still i want an easier life with my diabetes, part of me even wishes for mixed insulin 2 times a day.

Going on a break is no way failure on my part but i need a break from the pump problems im having & maybe it will help my depression, (i am in no way blaming my diabetes as a cause of this depressive period).

I hope going back is as easy as leaving MDI behind when i went on my pump.

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Diabetes awareness month

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Well November is diabetes awareness month & on 14th November its world diabetes day (WDD).

I shall be, like my pancreas challanged world wide family standing tall with my insulin & saying diabetes screw you (and ending the day with a curry at a retirement thank you meal).

The picture i have chosen as my header made me smile as the 3 little people show the 3 faces of diabetes we all put up with every day (well not every day but you know what i mean).

I find it sad that there has to be a month dedicated to diabetes awareness, in my mind everyone should be aware of the signs of diabetes as it may save someone’s life.

So i am going to highlight the key signs right now

■ passing urine more often than usual, especially at night.
■ increased thirst.
■ extreme tiredness.
■ unexplained weight loss.
■ genital itching or regular episodes of thrush.
■ slow healing of cuts and wounds.
■ blurred vision.

please if anyone you know is showing several of these signs, get them to the doctors or hospital you may save their life.

time to break free???

this is a topic which some may argue with me over my choices & i dont wish to engage in an argument with anyone over what i do with my diabetic care.

i’ve thought about this for a while but i want a pump break.

if that means a break for a month while i figure out if pumping is really for me or a divorce style situation but without the cost, then so be it.

i’ve been pumping 13 months now & yes i’ve had problems (please see my anniversary blog) but more problems are developing & i’ve had enough of it all especially the more recent issues of….
the leaking cannulas gets me down & is embarrasing when in public & it goes onto my clothing.
the hypers from cannula changes
my skin, i have noticed for a few months that my skin around my cannula sight when removed is bright red & the skin has come off with the sticky pad

i love the fact i look normal without having to inject in public but the beeping/vibrating boobs does cause looks when my pump tells me there is an issue.

i’m nervous about going back on my pens as it feels like a step back in my diabetic care but until that cure is here (dont forget its only 10 years away) i need to find a insulin therapy that makes me happy as no longer taking my insulin isnt an option

Looking back at my year of pumping: what I have learned and what I didn’t expect

12 months ago on the 3 September 2013 (the day before my 26th birthday), I walked into Manny Cussins diabetes centre in Leeds for another junction in my diabetes road map.

Along with 3 other people (and one wife), I jumped on the diabetes bus & soon arrived at junction Insulin pump.
After learning how to fill a reservoir, what we need to order, when to order supplies *note keep an eye on what you have not what you think you have*, our account number with Accu-Chek, what was in all the boxes in front of us, when to change the batteries in our handset & pump, how to change a cartridge & how to prime our tubing line.
Then it was time to do my first cannula, as the only female in the group the blokes were asked to leave the room while one of the wife’s of the men in the group & the Accu-Chek rep helped me put the cannula in & it didnt hurt!!! hallelujah!!
Then once everyone was back in the room & cannulated it was time to take the plunge & connect to our pumps (our basal profiles were already set on the pump & handset as were our ratios & sensitivity ratios), I tested my blood sugars & corrected (I was in the 9’s at the time) using the handset & then I was released from hospital (after my DSN said she would ring me the next day to check I was ok) & was suddenly #pumpinganddangerous

Ok my bloods werent perfect to start, my bloods were high but what do you expect? I’d had half my lantus insulin that night & none in the morning.

First night was ok apart from the occlusion in the middle of the night, wow my pump can wake the dead!
Also the safety limit on my boluses were too low so I couldnt have the correct amount of insulin without repeated boluses (and noone wants to stack insulin).

I dont know what everyone else was like the first time they had a cannula in but I avoided everyone & everything, in fear that I would catch my tubing or cannula & rip it out (the only known enemy to them is door handles….)

It took a while to get a rhythm with Jerry who is my third insulin therapy in nearly 12 years.
Now its a cannula change every 2 days not every 3 days as I find I either leak on day 3 or have an infection (mmmmm pumpers custard…..not!!) & new cartridge every 2-3 days. This is my life now on a pump, no new needle each injection, carrying new cartridges of novo rapid or lantus incase I may run out, no air shot in public with on lookers thinking what the ????

One thing I have noticed due to my job (i’m a barristers clerk for my sins & sometimes have to attend court). You must let security know you are a pump user. They have had me walk up to the body scanner, sticking my hand down my cleavage various times to produce Jerry. Security now know i’m hiding a pump down there & are nice about it.

Now where to put your pump is harder, i’m not a gorgeous size 8 model but a tall curvy woman. At work Jerry goes in a carry case held around my neck but for bed time Jerry likes to roam free & boy is he one naughty pump, he’s known to jump out of my top onto the mattress, floor or down the side of the bed #ouch

In 12 months i’ve had :-
Bleeding cannulas
Leaking cannulas
Cannula site infections
Blood in my tubing
Hypers
Hypos
Bruises
Pain from cannulas
I’ve had pump “failure”
Various occlusions (mainly at night)
Cartridge/cannula changes while half asleep

Yes a lot has gone wrong in 12 months but I dont think i’d give my pump back, its the closest thing I will ever again have to a working pancreas.

Yes I have a huge pump manual & text books but like any diabetic would tell you (or I think would tell you), life with diabetes isnt textbook. The disease doesnt behave how an author in a book writes about it, it reacts to everything & anything that gets thrown at the diabetic.
We test multiple times, we try EVERYTHING & ANYTHING so we can try to attempt to have an easy/normal life, we ask other diabetics what they would do & if it fails – we didnt fail, it just didnt work this time.

Jerry as I type is currently nestled between my boobs in the vague hope of performing the great escape (am I the only one who hears the music & pictures my pump holding a spoon digging for freedom? Nope? Just me then).

So thats my first 12 months of pumping & heres to the next 12 months (unless the cure comes before then).

Byline by Jerry
Hello dear readers.
You all know a bit about me from Laura’s ramblings (sorry I mean blogs) but i’m not as bad as she makes out. I’m a young pump, I just wanna have fun!
What Laura said about me planning the great escape, is true but dont tell her #diggingforfreedom
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